Living with Cystic Fibrosis

Introduction Cystic fibrosis (CF) is a life-threatening, genetic disease that mostly damages the lungs and digestive system. Its a complex condition, with individual forms and severity of the symptoms. Various factors like age of diagnosis, number, type and control of infections, treatment options, comorbid conditions, etc. can affect individuals health, course of the disease and quality of life. Many CF patients will grow into adulthood, so quality of life is very important for the overall health and everyday living. Aim of the study to screen the quality of life in CF patients in Republic of Macedonia. Subjects and methods in the study we have enrolled 67 CF patients. We have created questioners specially designed for this purpose, with questions related to their everyday living with CF. Results overall, majority of the patients with CF live normal life, have common and frequent social interactions, emotionally are stable but still the fear from the stigma in the society is present. Conclusion despite the obstacles CF patients must overcome in the everyday life, they still can have full and meaningful lives, regardless of the severity of their condition.